Tuesday, June 24, 2014

The love/hate relationship of hypo and hyper glycemia.

Well.. What can we say about highs and lows, other than they stink!!

I have had to endure a few hypoglycemic episodes myself, but they are far and few between. I couldn't begin to imagine living with frequent highs and lows on a regular or even a daily basis. This is the typical cookie cutter explanation of both hypo ad hyperglycemia:

Compliments of www.JDRF.org
Hyperglycemia Too high a level of glucose (sugar) in the blood; a sign that diabetes is out of control. Many things can cause hyperglycemia. It occurs when the body does not have enough insulin or cannot use the insulin it does have to turn glucose into energy. Signs of hyperglycemia are great thirst, dry mouth, and a need to urinate often. For people with type 1 diabetes, hyperglycemia may lead to diabetic ketoacidosis.
Hypoglycemia Too low a level of glucose (sugar) in the blood. This occurs when a person with diabetes has injected too much insulin, eaten too little food, or has exercised without extra food. A person with hypoglycemia may feel nervous, shaky, weak, or sweaty, and have a headache, blurred vision, and hunger. Taking small amounts of sugar, sweet juice, or food with sugar will usually help the person feel better within 10 to 15 minutes. See: Insulin Shock.

Thursday, June 19, 2014

Ten things NOT to say to a diabetic (compliments of JDRF)

Ten things NOT to say to a diabetic
I ran across this article this morning and throught it was great!!  We, as a whole, have many questions to ask people with different complications and illnesses, and sometimes they may come across as offensive or insensitive. We have had a few of these asked to us with Maddy's diabetes. I thought I'd share with you to see what you thought.

Wednesday, June 18, 2014

Breakthroughs with the artificial pancreas!!

I couldn't believe my eyes when I looks on my local news station and read about the bionic pancreas!!

http://www.wdtv.com/wdtv.cfm?func=view&section=5-News&item=Bionic-Pancreas-Brings-Hope-for-Type-1-Diabetics-16506

I will be meeting with Dr. Povroznik very soon to discuss this more in person. I am so excited to hear more about this study.

JDRF has been dedicated to studies such as this as well. I'm praying hard that this vision becomes a reality soon!

What are your thoughts on the bionic pancreas? If you are a diabetic, are you interested in trying this out?
I'd love to hear form you!!

Monday, June 16, 2014

Diabetes Statistics world-wide

World-wide diabetes statistics

I was doing some research on what the world's diabetes statistics are and WOW.. I was amazed.. I added the link for you to look through, but let me say  that I was stunned that the top five are as follows..
1. China (92.3 million)
2. India (63 million)
3. US (24 million)
4. Brazil (13.6 million)
5. Russia (12.7 million)

I am sure that the total population has something to do with these stas, but I really didn't expect to see China as #1!!
I also found this info on the site.

Diabetes across adults and children

The following figures indicate the differing proportion of the two main types of diabetes across age groups:
  • Adults: 10% have type 1 diabetes
  • Adults: 90% have type 2 diabetes
  • Children: 98% have type 1 diabetes
  • Children: 2% have type 2 diabetes.

Adults and children combined:

  • 15% have type 1 diabetes
  • 85% have type 2 diabetes

What are your thoughts on this?

Saturday, June 14, 2014

Grazing

I have always been a snacker. My girls have followed my foot steps as well; we'd rather 'graze' all day than eat large meals, but it isn't that easy to do with diabetes. Today, we were at a fundraiser that had little snacks available. Maddy had just been nibbling throughout the day with a cracker or a little bite here and there and her sugars paid for it. She ran steady in the mid 200's.. We were just so boggled by this. She wasn't eating very carby foods, and it was literally just a bite here and there. Of course, she would check her sugar every couple of hours, but we were taught if she was eating a snack under 15 carbs, she doesn't need to treat for it (as long as sugars are good). What happens if she prefers to just nibble throughout the day? Does she need to treat herself for every snack, every other snack, or is she not able to 'graze'? These were all questions going through my mind..

I did a little research and found that diabetics really just can't graze. It's tough enough to constantly check your sugars, treat with insulin, battle highs and lows, and watch every single thing you put in your mouth; now you can't be a snacker.. It seems a never ending losing battle for diabetics. But the good news is; you can be a frequent eater by eating 6 small meals a day instead of 3 large meals. I found a great article explaining this.

http://www.diabetesforecast.org/2008/oct/the-art-of-grazing.html

So afternoon sacking may not be an option, but frequent and well chosen meals can make your small appetite easier to manage.

Here is a blog that I read: http://www.diabetesselfmanagement.com/Blog/Flashpoints/graze-or-gorge/

Friday, June 13, 2014

Teenage drama with diabetes

I'm sure that I can speak for many parents with a juvenile diabetic between the ages of 11-16 or so, when I say that they try so hard to forget about being a diabetic. At first, I thought that Maddy was just rebelling against me by sneaking sacks and hiding wrappers in her room. I noticed that when I uploaded her pump readings, she wasn't checking sugar with the meter, but she would rattle off sugars to me throughout the day... I was so upset with that that I would ground her and think that she was doing this just to defy me...
    I began to look into this a little further and found out that this is extremely common with teenage diabetics. They already are dealing with hormonal imbalances, acne, peer pressure, and everyday stress of being a  teen; but to top it off, they have to be 'different' and can't just go out ad grab some ice cream on a hot day or pig out on some pizza. They get so frustrated with the constant food watching, sugar checking, and injections that they rebel against themselves; not us as parents.
   After I had spoken with our diabetic educator, she explained to me that this is a very common part of coping with diabetes during the teenage years. They no longer have to rely on us for food and they are finding their independence with managing themselves. They are testing their limits (sadly they don't fully understand what they are doing long-term to themselves) and their abilities to 'control'  what they ultimately can't control without actually doing what's right with their diabetes. This phase is normal parents. I promise, you are not alone and they aren't sneaking foods, fibbing about sugar checks, forgetting their sugar kits, etc, to upset you. Please check out the sites I found to help.

  I found this on the JDRF site:
http://jdrf.org/life-with-t1d/type-1-diabetes-information/control-and-management/helping-your-child-or-teen-live-with-type-1-diabetes/

http://www.healthmonitor.com said that:
No matter your situation, you can help your child manage their condition and get the most from their teen years. The key is to touch base frequently, so you know how their diabetes management is going. Parents who praise their teens’ self-care successes—rather than criticize or punish them for failures—are most successful at helping their kids stay on top of their condition, according to a study published in Diabetes Spectrum. Here’s how to handle the most common stumbling blocks: 

1. The problem: Your teen is fudging their A1C numbers.
Some teens worry that their parents will be upset about a “bad” number, so they doctor it. “Children with diabetes see the hurt in their parents’ eyes and hear it in their voices,” says Kelly Kunik, a blogger and diabetes advocate, who has had type 1 diabetes for 30 years. “They figure that if they change the number, they will make their parents happy.”
The solution
: If your child comes home with a poor reading, don’t get upset. “There are no bad blood glucose numbers; there are challenging blood glucose numbers,” says Kelly. “I think if teens can understand that—and know that their parents will remain calm—they’ll be more likely to test.”

2.
 The problem: Your teen is refusing to monitor their blood sugar or is going on food binges. Children who have always been compliant about managing their diabetes may suddenly rebel in their teen years. One reason is that the condition causes them to feel “different” from other kids their age. Also, teens are expected to become self-reliant, so if their blood sugar levels spike despite their best efforts, they may feel frustrated or inadequate. Finally, many teens balk if they feel their parents are overly controlling. “I had much of the normal teenage angst, rebellion and noncompliance,” recalls Brandy Gunderson, a 39-year-old mother of two who has had type 1 diabetes for 24 years. “I rarely tested my blood sugar and was morbidly underweight throughout my teens and twenties. People don’t realize just how much diabetes controls every aspect of your life.”


The solution: Let your child know it’s not their fault if their blood sugar is difficult to control. During the teen years, a hormone that stimulates the growth of bone and muscle acts against insulin, causing swings in blood sugar levels, according to the Juvenile Diabetes Research Foundation. Encourage your child to take an active role in their diabetes care. Help them set small goals, such as cutting back on sweets, and praise them when they meet those goals. Also, help your teen connect with other kids who have the disease. Ask your healthcare team for a referral to a local support group. And consider sending your child to a summer camp for teens with diabetes; more than 400 exist worldwide. To find one near you, go todiabetescamps.org.

3. The problem: Your child is forgetting to test their blood sugarToday’s teens are often just as busy as adults, with hours of homework, soccer practice and music lessons—not to mention outings with friends. As a result, it may be difficult for your teen to juggle the additional responsibility of staying on top of their blood sugar level.
The solution
: Even though your child is old enough to handle most of their self-care, you should be involved. Consider saying, “I know you’re very busy. What would help you remember to test yourself?” You might offer to text them reminders. You might also consider checking your child’s meter history once a day to pinpoint when they are forgetting to test.

Finally, ask your teen’s healthcare team, school nurse, coaches and friends for help. Give the school staff a copy of your child’s diabetes care plan, and meet with them to discuss how it can be implemented at school. Also, if your child is receptive, talk with them and a few of their friends about ways they may be able to help your child stay on track. For instance, the friends can easily remind your teen to do a blood sugar check.

I have recently created my website!!! Please check out the first phase of many to come. I pray that my information and resources help my fellow diabetic families.

www.diabeticfamilies.com




A little update

The past few weeks have been so amazing with JDRF! My Kids Walk for a
Cure raised almost $3500.00 in just 5 days. The children and I
celebrated the entire afternoon outside in the sun with our Walk for a
Cure for Diabetes. My family and I also attended the West Virginia
Branch JDRF Walk for a cure at the state's capitol. Hundreds of diabetic
families and many diabetes related vendors came to support JDRF. The
Walk for a Cure took place around the entire capitol complex. It is such
an amazing experience to be a part of raising both funding and awareness
with JDRF. I also hosted a middle school dance last weekend. It was such
a blast. I actually dressed up in a silly costume and learned a few line
dances from the  kids! It felt great to have so much support from the
teenagers.

I got to have the most moving moment with a mother at church last

week. I had spoken at a school the Friday before about what diabetes is,
and the effects of both types 1 & 2 diabetes. So Sunday came around and
a mother of a 2nd grader approached me after I finished teaching
children's church and said "I don't know what you said to those
children, but I had 3 different groups of children knock on my door this
weekend selling JDRF sneakers." She went on to say, "What the amazing
part was is that all of the children were able to tell me what JDRF and
diabetes both were!!" Of course, my eyes welled up with tears as I
hugged that mother and thanked her for sharing such amazing news with
me.

I have recently shared an amazing triumph with a newly diagnosed 16

year old boy named Justyn. He was just diagnosed with type 1 diabetes in
February. He was so ill with a diabetic term called DKA, that he just
lost both legs from below his knees down, and 8 of his fingers. Type 1
diabetes comes on so quickly and parents just don't know what is going
on  with their child until they are so ill that hospitalization is
required. It's the worst feeling in the world, as I have endured that
with my daughter Maddy at age 5. But the amazing news is that Justyn was
just released from the hospital yesterday to go home!!! He gets fitted
for his prosthetics in a few weeks and has such an amazing support
systems through me, diabetic families, JDRF, and many prosthetic
families to keep them up and running. He has such a great heart and
amazing personality. Justyn and my daughter Maddy are just 2 of my
little heros that struggle with diabetes. God bless Justyn and his
family!!

I have also had the pleasure with meeting many newly diagnosed

diabetics. One of my favorite jobs with being an advocate and
spokesperson with JDRF is that I get to deliver Bags of Hope to the
newly diagnosed diabetics. This past 2 weeks, I have worked with a 5
year old named Evan and a 33 year old named Tom. Type 1 diabetes has no
age limits, and is increasing it's diagnoses every year.. Every 30
seconds, someone in the US is diagnosed with diabetes.  JDRF is working
so hard at slowing and eventually stopping the prevalence of diabetes.
"Together, we are working on creating a world without type 1 diabetes."

My book is coming right along as well!! I have made the decision to

make it a 60 page cookbook/tips for cooking for diabetic families on the
go. My friends and family have titled me as an expert at 'kid and
diabetic friendly' meals and snacks. I absolutely love being able to
make sweet goodies and tasty meals for my family that we all enjoy and
that won't negatively affect Maddy's blood sugars. I will not be selling
my cookbook. I am in high hopes to add it to the information given in
the Bags of Hope to newly diagnosed diabetics. I know how tough it is to
find meals, school lunch foods, and snacks that kids enjoy and that you
don't have to worry about them eating, so my gift to our new diabetics
is a started kit to guide them through the process of learning how to
safely manage their diabetes but still have food that tastes good.
  I have a busy month ahead with holding more Walks for a Cure and will
be at various health fairs across the state. My family and I feel so
grateful and blessed that we have the opportunities to offer love and
support to other families that are learning how to live with diabetes.
We feel very fortunate to share our knowledge and experiences to assist
new diabetics.